Amazone
Category: Uncategorized | Date: Sep 03 2008 | By: lolayabonobo
Thank you all so much for your suggestions. I will email these organisations one by one, once I try to find out more information from Claudine.
I emailed a doctor at Duke University and this is what he said…
Vanessa,
This is an incredible case of what appears to be a large tumor…..I am
just not sure what but may be it is a Burkitt’s lymphoma. There is no way
fro me to diagnose by picture…..we have people in Tanzania from Duke but
I do not know of anyone in the Congo and I feel impotent to give you any
suggestions.
My colleague John Bartlett here at Duke just came back from Tanzania and he
a director of Duke’s Global Health so he might be able to provide
better insight and you could contact him. Just not sure what kind of
medical care is available in Congo.
I wish I could be of more help but just don’t know what is available.
John P.
I emailed John Bartlett and he said,
Vanessa, how quickly has this tumor developed? If it has been very fast (ie days to weeks) then Burkitt’s lymphoma is a good possibility. If it has been over months, then I would guess that she has nasopharyngeal carcinoma. A biopsy is needed to differentiate between them. Based on my travels in East Africa, I think that medical care in Nairobi, Eldoret or Kampala would give her the best chance for care. Centers in these cities do offer chemotherapy for Burkitt’s, which has a reasonable chance for cure. It is complicated by the fact that she is from DRC and may have a hard time accessing care in these facilities as a non-citizen. Sorry not to have more hopeful news, John
**
They were both very fast to respond, which I’m grateful for. So I’ll email Claudine now and try and find out more information to send to the NGOs.
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7 Responses to “Amazone”
Christine C., on 03 Sep 2008
Caludine and Vanessa…have you tried contacting Doctors Without Borders…they have, at least what it says on their website, 3000 medical professionals in DRC. Here is the link to their website (the Congo link):
http://www.doctorswithoutborders.org/news/country.cfm?id=2290
And here is the link to their contacts page…maybe a call to the International Office in Switzerland???
http://www.doctorswithoutborders.org/offices/
gretpc, on 03 Sep 2008
The International Kids Fund helps children get the medical care they need. I saw a similar story of a girl with a tumor like this. Here is the link: http://internationalkidsfund.org/index.cfm
And the email
info@internationalkidsfund.org
Thank you for helping this child!
Anna M, on 04 Sep 2008
Vanessa, not sure if you have thought about MSF (medecins sans frontieres), I believe they do have some sort of operations in the DRC, attached web site and contact mail address..a heartfelt thank you for all your efforts,
http://www.msf.org/msfinternational/countries/africa/democraticrepublicofcongo/index.cfm
webmaster@msf.org
Wanda, Atlanta, on 04 Sep 2008
I am sending the link to all news shows and I sent to Ophry Winfrey - maybe we can catch somone’s ear.
Anna M, on 04 Sep 2008
Vanessa, not sure if you have thought about MSF (medecins sans frontieres), I believe they do have some sort of operations in the DRC, attached web site and contact mail address..a heartfelt thank you for all your efforts,
http://www.msf.org/msfinternational/countries/africa/democraticrepublicofcongo/index.cfm
webmaster@msf.org
colleen, on 04 Sep 2008
Please let us know if it becomes a question of who can help pay for travel - if a clinic will in fact offer to help - and what is the best way to donate where the funds will be available when needed, thanks.
colleen, on 05 Sep 2008
Question - is it a matter of getting a doctor in Kinshasa right now? I have contacted many organizations here in the states, nothing accomplished yet, but i did come across this local number and wanted to pass it on - from the International Rescue Committee - Werner Vansant Representative, Kinshasa IRC - 243-780-2088, 34 Ave. Pumbu, and email: irckinrep@ic.cd
two other phone numbers in Kigali, Rwanda for Int.Rescue Committee field office -eastern DRC program -Michael Despines
250-0830-2184 cell
871-761-274-690 Sat phone
email cdirccongo@compurserve.com
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